Fighting for recognition, equitable funding, and policy reform for individuals with profound autism.
Individuals with profound autism are among the most underserved in the disability community. Despite requiring the highest levels of care, they receive disproportionately less funding and attention than other populations on the autism spectrum.
Roman Shield fights to change that—through education, coalition building, legislative engagement, and direct family advocacy.
Many systems fail to distinguish between autism and profound autism. The result: families in crisis receive services designed for individuals with far less intensive needs. Roman Shield advocates for policy that recognizes this distinction.
By 2035, we aim for 50+ Roman Shield–inspired pooled trusts operating nationwide, with profound autism recognized as a distinct funding category at the federal and state level.
Our advocacy efforts target systemic barriers that leave families without adequate support.
Advocating for profound autism to be recognized as a distinct category with appropriate funding levels, service models, and policy attention at both state and federal levels.
Profound autism has historically been underfunded relative to need. We work to ensure funding distribution reflects the actual cost and intensity of care required.
Engaging with legislators and policymakers through testimony, coalition letters, and direct meetings to reform policies that impact our beneficiaries and their families.
IEP and special education advocacy, benefits navigation, legal referrals, and direct support helping individual families secure the services they need.
Every voice matters. Whether you’re a family member, professional, or concerned citizen, your advocacy makes a difference for individuals with profound autism.
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